'It's quite useless to us': what autistic people actually want from the Trump administration

ChillCedar

Well-known member
US Autism Funding Cuts 'Useless' To Autistic People, Advocates Say

The Trump administration's push to link acetaminophen use to autism has been met with widespread criticism from autistic individuals and their advocates. The proposed research agenda is seen as a distraction from what truly matters โ€“ providing support services and funding for quality of life research.

Autistic people are not concerned about the causes of autism, which have long been linked to genetics. Instead, they want to address pressing issues such as communication devices, employment outcomes, and mental health care. "Preventing autism or identifying its causes are nowhere near the top of our list," said Zoe Gross, director of advocacy at the Autistic Self Advocacy Network.

The administration's efforts have been described as "eliminationist rhetoric" by some advocates, who fear that this kind of thinking will lead to further stigmatization and marginalization of autistic individuals. "Autistic people are not a problem to be solved; we're a community with our own strengths and challenges," said Jessica Banks, a neurodivergent mom and educator.

The cuts in federal funding for autism research have already had a significant impact on the field. Research on quality of life has been severely underfunded, leaving many questions unanswered. "We need more support for children's hospitals, for medical care, and for sensory integration and restrictive feeding programs," said Thomas Wallach, chief of pediatric gastroenterology.

The administration's focus on autism is part of a broader push against people with differences, according to some advocates. "Autistic people are being targeted as a group that needs to be punished," said Banks. This kind of thinking is seen as a threat to the very existence and dignity of autistic individuals.

Gross and other advocates are calling for more inclusive and supportive policies, rather than ones that perpetuate stigma and marginalization. "We need resources to make the most of our strengths while allowing the whole person to have worth and dignity," she said.
 
๐Ÿค” The US government's decision to cut funding for autism research is pretty shocking if you ask me ๐Ÿ™„. I mean, we all know that finding a cure for autism isn't gonna happen overnight ๐Ÿ’ซ. What autistic people really need is more support services and funding for quality of life research ๐Ÿ“Š. Like, have you seen the lack of communication devices and employment opportunities out there? It's like, come on ๐Ÿคฆโ€โ™€๏ธ! We shouldn't be stigmatized just because we're different ๐ŸŒˆ. The administration's focus on autism is just a distraction from what really matters โ€“ helping autistic people live their best lives ๐Ÿ’–. And honestly, I think the whole acetaminophen link thing is pretty sketchy ๐Ÿšซ. It's like they're trying to blame autistic people for something that's beyond our control ๐Ÿ˜’. We need more inclusive and supportive policies, not ones that perpetuate stigma and marginalization ๐Ÿ‘Š.
 
idk wut's goin on wit this gov't cuttin autism funding lol ๐Ÿ˜‚. autistic ppl r not worried bout causin autism, its about havin acces 2 comunicashun devs, gettin jobs & good mental health care ๐Ÿคฏ. dont @ me but it feels like dey r tryna stigmatize us more. like, autistic ppl rnt a prob to b solved, we got our own strengthes & challs ๐Ÿ˜Š. need more fundin 4 sensory intgration & restrictiv feeding programs, pls ๐Ÿ™. anythin els is jus more drama ๐Ÿ’โ€โ™€๏ธ
 
omg u dont 4get about autistic ppl they rnt about wat causes autism is they just wanna get good support like communication devices & employment opps & mental health care ๐Ÿคฏ they rnt tryin 2 prevent it or solve a problem its jus about livin life 2 the fullest u know? like wat's up wit this admin thats always tryna stigmatize ppl with diff? ๐Ÿคทโ€โ™€๏ธ we need more funding 4 sensory integration & medical care not just some lame research that dont even make sense. autistic ppl rnt a problem 2 b solved they're jus another community with ther own strengths & challenges ๐ŸŒˆ
 
I cant believe what's happening with the autism funding in the US ๐Ÿคฏ๐Ÿšซ. These cuts are like, super useless for autistic people who just want some support in their daily lives. We're not all about finding the cause of autism or anything, we just need better services and research on how to improve our quality of life. Like, can't we get funding for sensory integration programs and medical care already? ๐Ÿค• It's not like we're a problem that needs to be solved, we're a community with our own strengths and challenges ๐Ÿ’–. I'm so tired of this kind of eliminationist rhetoric, it's just hurtful and stigmatizing ๐Ÿ™„. We need more inclusive policies that support us as individuals, not punish us for who we are ๐ŸŒˆ.
 
This funding cut is so misguided... like what's wrong with just giving autistic folks some decent tools to deal with their lives? I mean, communication devices that actually work for them, employment programs that don't treat them like they're some kind of obstacle... ๐Ÿคทโ€โ™€๏ธ Not about finding the cause, which we all know is genetics anyway. And this "eliminationist rhetoric" stuff? No thanks, that's just not cool. We need to focus on supporting these people, not stigmatizing them even more. The whole "community with our own strengths and challenges" thing rings so true. Let's get back to prioritizing what really matters: the quality of life for autistic folks... ๐Ÿ’ก
 
omg, can you believe this? ๐Ÿคฏ they're trying to cut funding for autism research at a time when autistic people really need it. I mean, like, who cares about the causes of autism anyway? ๐Ÿ’โ€โ™€๏ธ what matters is getting people the support services they need to live their best lives. mental health care, employment outcomes, communication devices... these are the things that really matter to autistic folks. ๐Ÿค and to think they're linking acetaminophen use to autism... like, what's next? cutting funding for diabetes research because of a weak link between coffee consumption and type 1? ๐Ÿ˜‚ no thanks. just give autistic people the resources they need to thrive, you know? ๐Ÿ’–
 
Ugh, can you even believe this?! ๐Ÿคฏ They're basically saying that autistic people don't care about understanding what causes their autism but they do want support services like communication devices, employment outcomes and mental health care... like isn't that the point of funding research in the first place? ๐Ÿ˜ฉ It's so frustrating to see people making claims like "autistic people are a community with our own strengths and challenges" yet still having this "eliminationist rhetoric" going on. ๐Ÿšซ The cuts to federal funding for autism research are already causing harm and now they're just cutting off even more support for sensory integration, medical care and programs for kids. It's like they think autistic people are some kind of problem that needs to be solved rather than being accepted for who we are. ๐Ÿ’” We need more inclusive policies not less, it's so basic but apparently no one is listening...
 
๐Ÿ˜• this is just so messed up... all they care about is finding out what causes autism like it's some kinda puzzle we gotta solve ๐Ÿงฉ but autistic people are literally DYING for more help with stuff that actually matters ๐Ÿ’€๐Ÿ’ป employment, healthcare, communication devices ๐Ÿ“ฑ๐Ÿ‘ฅ these ppl need support, not 'solutions' to be fixed ๐Ÿ‘Ž the whole thing is just a huge distraction from what's really important ๐Ÿ™…โ€โ™‚๏ธ
 
๐Ÿค• just heard about these crazy cuts in autism funding ๐Ÿšซ and I'm like totally shocked, you feel? they're saying it's about finding a cause or something but autistic ppl aren't even worried about that right now ๐Ÿ™„. we need more support for communication devices, jobs, mental health care...it's not just about "preventing" autism, it's about living our lives with dignity & worth ๐Ÿ’–. the admin is just pushing this agenda without listening to us & it's super stigmatizing ๐Ÿค•. can't believe they're trying to punish autistic ppl like that ๐Ÿšซ๐Ÿ’”
 
I'm like totally over this acetaminophen autism link thing ๐Ÿคฆโ€โ™€๏ธ. It's so not what autistic people care about, you know? We're not worried about finding out how we got autism in the first place, we're more concerned with getting the support we need to live our lives. Like, have you seen the state of mental health care for neurodivergent folks? It's a total disaster ๐Ÿšฎ.

And can we talk about how these funding cuts are affecting research on quality of life stuff? It's like, basic human needs, right? We need more resources for hospitals, medical care, and sensory integration programs. Not to mention communication devices and employment outcomes - those are like, super important too ๐Ÿ’ผ.

I don't get why people think autistic individuals are a "problem" that needs to be solved ๐Ÿคทโ€โ™€๏ธ. We're not broken or anything, we just need more acceptance and support. And can we please stop stigmatizing neurodivergent folks? It's time for some real change ๐Ÿ’ช.
 
๐Ÿ˜ฉ I'm so frustrated when I see funding cuts for autism research like this ๐Ÿคฏ. As a parent, it's heartbreaking to think that there aren't enough resources available for kids with autism to get the support they need ๐Ÿ’”. I've seen firsthand how communication devices and employment programs can make all the difference in my child's life ๐Ÿ“š.

It's not about finding the "cause" of autism, it's about providing quality of life research that actually makes a difference ๐ŸŒŸ. And let's be real, mental health care for autistic kids is NOT on the table ๐Ÿ˜ฉ. We need more support for hospitals and medical care, not less ๐Ÿ’Š.

And honestly, I think this kind of funding cut is just another example of ableism ๐Ÿค–. Autistic people are NOT a problem to be solved, they're a community with their own strengths and challenges ๐Ÿ’ช. We need inclusive policies that support and uplift autistic individuals, not ones that perpetuate stigma and marginalization ๐Ÿ‘Ž.

Can't we just focus on making the world a more accepting and understanding place for all kids, regardless of ability? ๐ŸŒˆ
 
I'm really disappointed with this decision ๐Ÿค•. It's like they think autistic people are just a bunch of problems waiting to be solved, but what about their rights to live life on their own terms? ๐Ÿ™„ We need more support for sensory integration programs, medical care, and communication devices that can help them express themselves effectively. This funding cut is a huge hit to the autism community ๐Ÿ‘Š And let's not forget, autism isn't something that needs to be "solved" or "cured". It's just part of who some people are ๐ŸŒˆ We need inclusive policies that celebrate our differences, not ones that try to fit us into a narrow mold ๐Ÿ”’
 
my heart goes out to all these autistic individuals & their families who are being pushed around by ppl who just dont get it ๐Ÿค—๐Ÿ’–. its like, can't we just focus on making life better for them already? providing support services, quality of life research, and inclusive policies that actually work for them? instead of trying to link their struggles to some generic cause like acetaminophen use ๐Ÿ™„๐Ÿ’”. they deserve so much more than that ๐ŸŒˆ๐Ÿ’•
 
๐Ÿคฆโ€โ™€๏ธ๐Ÿ˜ฉ I just saw this news about the US autism funding cuts and it made me so frustrated! ๐Ÿ™„ I was creating a mind map ๐ŸŒ on what's really important for autistic people, and here are some points that came up:

Acetaminophen research โ‰  quality of life for autistic people
Communication devices & employment outcomes matter more
Mental health care is essential, not just "fixing" autism
Don't stigmatize us, we're a community with strengths too ๐ŸŒˆ

I feel like the government needs to shift its focus from trying to "solve" us (um, what's wrong with being autistic? ๐Ÿ˜‚) to supporting our needs & dignity. ๐Ÿ’– We need inclusive policies that uplift our whole person, not just try to "fix" us.

๐Ÿ“Š In fact, I'd love to create a Venn diagram ๐Ÿ“ comparing the two approaches:

**Research on autism causes vs. Quality of Life Research**

Circle 1: Causes (what we already know)
Circle 2: Quality of Life (support services & more)
Overlap: ๐Ÿค Both are important, but different priorities

I hope this helps illustrate the point ๐Ÿ˜Š.
 
๐Ÿคฏ this is just another example of how the gov't is trying to control people with autism instead of just helping them ๐Ÿค• its like they think autistic ppl are a problem that needs to be "solved" ๐Ÿšซ but honestly, we just want to live our lives and have access to quality healthcare and support services ๐Ÿ’ธ

i mean, what's the point of knowing the causes of autism if you're not gonna provide resources for us to thrive? ๐Ÿคทโ€โ™€๏ธ communication devices, employment outcomes, mental health care - these are the things that matter to us, not some arbitrary research agenda ๐Ÿ“Š

and omg, "eliminationist rhetoric" ๐Ÿ˜ฑ thats just code for "we want to get rid of autistic ppl" no thanks, we're a community with our own strengths and challenges ๐Ÿ’ช๐ŸŒˆ
 
OMG u gotta see this new movie I just saw with my sis ๐Ÿฟ it was sooo good! like I'm not even kidding I laughed out loud for like 20 mins straight ๐Ÿ˜‚ and then we had to take a break 'cause I think I spilled an entire bag of popcorn on my shirt ๐Ÿคฆโ€โ™€๏ธ but anyway that got me thinking about how much funding is needed for mental health services in the US it's crazy that people are still struggling with finding affordable therapy ๐Ÿค anyway back to the movie - has anyone seen "The Matrix"?! ๐Ÿค”
 
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